I-girl's EEG
I-girl had her EEG yesterday. She did very well. The night before, I showed her photos of M-boys EEG from last March. It made her really nervous, and she had a melt down because of it, but it could have been because she was so tired. We had to keep her awake two hours past her bedtime, and wake her up two hours before she normally wakes up in the morning.
Apparently it worked because she went to sleep perfectly for the EEG. The EEG she had a year and a half ago, she didn't fall asleep, she just got drowsy. We found it was much less stressful now that she is older. The doctor called us last night to let us know that he looked at her EEG and it looked "mildly abnormal". He suggested that we keep her on the phenobarbital for another 6 months, and then redo her EEG. The doctor wants to wean her off the phenobarbital before she is four. We feel like we did the right thing having her retested a year early. It is a comfort to know that she had been seizure free for eleven months, while her EEG is still slightly abnormal. It seems like there was a period of time between the time she was one, and two and a half, where she had several seizures (at least 10 or more), but has not had any this past year. We can only hope the next EEG will show improvement. Here are some photos of our day. And thanks to Grandpa for watching S-girl and M-boy for us. They had a great time with you!
This is her making a picture frame while we were waiting for her EEG. I love Primary Children's Hospital. They always have such fun things for the kids to do.
This is I-girl as they were putting the electrodes on her head. She was so patient.
They had a toy for her to play with that she loved.
This is when she started to get really sad. Right after the put her "special hat" on, she started to cry, and then when they turned the lights off, she really got sad. Luckily, I had a sippy cup full of milk for her, and that calmed her down. She went to sleep just shortly afterwards. That is Mike's head on the right side. He will lay down with her at night and tell her stories before she goes to sleep, so that is what he did yesterday.
This is her right after she woke up. She was in such a good sleep, and the test was only 30 minutes long. So, it was a good power nap for her. Gotta love the EEG hairdo!
She was so proud of herself when it was all finished. She walked around the hospital saying "I was such a good girl, I did a good job"! And she did!
Apparently it worked because she went to sleep perfectly for the EEG. The EEG she had a year and a half ago, she didn't fall asleep, she just got drowsy. We found it was much less stressful now that she is older. The doctor called us last night to let us know that he looked at her EEG and it looked "mildly abnormal". He suggested that we keep her on the phenobarbital for another 6 months, and then redo her EEG. The doctor wants to wean her off the phenobarbital before she is four. We feel like we did the right thing having her retested a year early. It is a comfort to know that she had been seizure free for eleven months, while her EEG is still slightly abnormal. It seems like there was a period of time between the time she was one, and two and a half, where she had several seizures (at least 10 or more), but has not had any this past year. We can only hope the next EEG will show improvement. Here are some photos of our day. And thanks to Grandpa for watching S-girl and M-boy for us. They had a great time with you!
This is her making a picture frame while we were waiting for her EEG. I love Primary Children's Hospital. They always have such fun things for the kids to do.
This is I-girl as they were putting the electrodes on her head. She was so patient. 
They had a toy for her to play with that she loved.
This is when she started to get really sad. Right after the put her "special hat" on, she started to cry, and then when they turned the lights off, she really got sad. Luckily, I had a sippy cup full of milk for her, and that calmed her down. She went to sleep just shortly afterwards. That is Mike's head on the right side. He will lay down with her at night and tell her stories before she goes to sleep, so that is what he did yesterday.
This is her right after she woke up. She was in such a good sleep, and the test was only 30 minutes long. So, it was a good power nap for her. Gotta love the EEG hairdo!
She was so proud of herself when it was all finished. She walked around the hospital saying "I was such a good girl, I did a good job"! And she did!
Comments
You and Mike are such wonderful parents. Your kiddos are so lucky.